Congenital Heart Information Network (CHIN)http://tchin.org/ or call (215) 493-3068
The National Marfan Foundationhttp://www.marfan.org/ or call 1-800-8-MARFAN ext 10 (1-800-862-7326)California Heart Connectionhttp://www.caheartconnection.org/
Camp del Corazon http://www.campdelcorazon.org/ or call (888) 621-4800Canadian Adult Congenital Heart Networkhttp://www.cachnet.org/ or call (416) 417-6523